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Case Studies

Supporting PPI in HITs – Young People

Supporting the involvement of children and young people in research and service improvement

The voices of children and young people can be missing when involving patients, service users and members of the public. Some organisations have put in place specialist posts and initiatives to address this gap, including for example, Bristol Clinical Commissioning Group and Healthwatch which focus on service improvement.

In health research work has also been done to reach out to children and young people. Six young people’s advisory groups have been set up across the country connected to the National Institute for Health Research through Generation R (see http://generationr.org.uk/ ), and one of these groups is in Bristol.

The Bristol Royal Hospital for Children and the Centre for Child and Adolescent Health at the University of Bristol also have well established initiatives. Changes to the way that resources are allocated put these local groups in danger.

The People in Health West of England team is supporting them to ensure an ongoing focus for this important area of involvement. The PPI facilitator who is funded by Bristol Health Partners to support involvement within Health Integration Teams has a specific role to facilitate the involvement of children and young people – a number of Health Integration Teams have a focus on health issues for children and young people.

The People in Health West of England involvement team can connect researchers to these groups when they need input on the design, planning and conduct of research.

Contact Mike Bell for further information mike.bell@bristol.ac.uk. The team can also provide access to useful resources for involving children and young people.